Ups & Downs

www.amberjoygiles.blogspot.com

Amber has had some ups and downs over the last few days since our last update on Sunday evening, but overall, she is doing pretty well.

She has been experiencing several little seizures, which have been successfully controlled with the anti-seizure medication. However, this morning, she had a fairly severe seizure and her brain could not be calmed down with that same medication, so they tried a couple others until it worked. The doctors are doing all they can to avoid, if possible, inducing a coma with the pentobarbital, so they are managing all of the seizure activity with other medications. It is promising that the seizure activity is no longer “continuous” as it was each other time they attempted to wake her up, but this additional medication does slow the “waking up” process. Obviously, the goal is no seizures, so this is what we're continuing to pray for.

The doctors believe that the severe seizure Amber experienced this morning may have been caused by a fever she has, and that the blood clot they found early this afternoon in Amber's right arm caused the fever. The fever is hanging on, so they have hooked her up to some cooling devices to keep her temperature at 35°C (95°F) to help calm her brain. They will probably keep this up for 24-48 hours, depending on how her brain responds.

Amber's recovery will be slow. Her days are a mixture of ups and downs, but we continue to keep our hopes up and have faith that she will make a full recovery. Amber is alive, and for this we are all very grateful. She had a better day yesterday. We hope that we continue to see progress each day, no matter how little.

Please keep praying, and when you do, please ask for Amber's brain to be healed. We believe that our continued prayers do make a difference. As Julie said, “Why this has to happen, I'll never know, but we stand united in prayer and faith to help Amber fight the greatest battle she has ever fought. Thank you one and all for your love and concern.”

Love you all.